The first opportunity for www.MSsymptoms.me and myself to participate in something outside of my own blog took place July 16, 2014 on Cure Panel Talk Radio. Dr. Barry Sing spoke with myself, Brad Mann and Suzanne Robins about the invisible symptoms of multiple sclerosis. Here is what I learned from my questions.
- Are there alternative memory examine methods for identifying memory issues in patients highly trained in memorization? Answer: There are several cognitive tests. All of these exams are given in the ideal setting of a quiet office with few distractions. These factors are recognized by the professionals but still leave the underlying problem for highly educated people trained in memorization.
- Have you ever heard of an MS patient with invisible issues of double vision in one eye vertically? Answer: Turns out my odd symptom of vertical double vision in my left eye is probably not MS. Sure is a puzzle since the ophthalmologist says the eye structure is fine. It is invisible to everyone except me.
- What advice do you have for patients concerned about the invisibility of their multiple sclerosis symptoms? Answer: My question about feeling awkward about telling the doctors about invisible symptoms was eased by the comment that neurologist have seen and heard everything. I still wish there was a magic test that conclusively says I am experiencing a symptom so that they and I can see it on paper or film. I guess I like to measure things and a little proof to back up my complaints wouldn’t hurt either.
To listen to the show titled, “The Many Invisible Symptoms of Multiple Sclerosis” at: http://www.curepanel.carefeed.net. I come in around 30-32 minutes into the show.