I have had MS for 20 years. I, too, was told not to read anything about it. Easier to do back then given the lack of Internet and resources. It is BAD advice. You have many decisions to make with the number one being, a treatment plan. Be proactive – this is your health and life. In early April 2014 I discussed the many medications I have been on, why I started them and what caused me to stop on my blog, www.MSsymptoms.me. One thing I have learned is that no MS treatment is going to latest forever, at least it hasn’t for me. It is a changing world with new discoveries everyday. You want to be aware of them.
If I had the opportunity to speak to myself at the time of my diagnosis, I would say this: Don’t cry those tears. You will get through this with many great years to come. Live life to the fullest potential each day. Don’t ever give up. There are times when MS is nowhere to be seen and life is normal. When MS is creating chaos, stay calm, strategize ways to deal with the inconveniences rather than just let it happen to you, and always remember – this too will likely pass. Don’t forget, in addition to the treatment plans for MS there are medications to make life easier when symptoms arise. MS symptom medications: http://www.mstrust.org.uk/atoz/drugs.jsp AND http://www.nationalmssociety.org/Treating-MS/Medications#section-3.
The advice I would give to myself at diagnosis would be: Find an easier path through life. Stress and lack of sleep are major factors in the progression and resurfacing of multiple sclerosis symptoms. Forgive quickly and bury the hatchet deep in someone else’s yard so you cannot find it. Make the decision to choose happiness now. Stay educated on the options available, ask for help when you need it, give back when you can, and keep healthy by staying away from sick people. Let those in your life know that getting sick means potentially new MS attacks for you so stay a distance away when they are not feeling well – including co-workers and friends. This has worked well in my life. Plus, I didn’t get as sick as often as everyone else either – a bonus. Instruct those around you on what to expect and how to help.
I discussed my diagnosis in May 2014 (12-19) on www.MSsymptoms.me. I recommend it to you. Remember, MS is happening to you but also to everyone who loves you and is part of your life. I wish I had realized this sooner. The best of luck. Please feel free to contact me anytime with questions. Written for: http://dontmswithmeblog.wordpress.com. Image from: tangibleireland.com.